🧭 Overview
🧠 One-sentence thesis
Nurses play a critical role in supporting clients and families through grief, providing palliative care that addresses physical and psychosocial symptoms, and preventing caregiver burnout through self-care and interdisciplinary collaboration.
📌 Key points (3–5)
- Self-care prevents burnout: Nurses must recognize warning signs of compassion fatigue and implement strategies (the "four A's": Attention, Acknowledgement, Affection, Acceptance) to maintain resilience.
- Grief assessment spans the continuum: Assessment begins at diagnosis and continues through bereavement, monitoring for physical, emotional, and cognitive symptoms in clients, families, and significant others.
- Palliative care is multidimensional: Effective care addresses physical symptoms (pain, dyspnea, nausea), psychological needs (anxiety, depression), social concerns (caregiver burden), and spiritual dimensions.
- Common confusion—normal vs. maladaptive grief: Normal grief includes sadness and capacity for pleasure; maladaptive grief involves persistent preoccupation, inability to perform roles, and symptoms lasting beyond six months.
- Interventions focus on presence and listening: The most important nursing intervention is active listening and supportive presence, as "perfect words rarely exist."
🛡️ Preventing Compassion Fatigue and Burnout
🛡️ Recognizing warning signs
- Nurses caring for dying clients are at risk for compassion fatigue and burnout.
- Warning signs to monitor:
- Has my behavior changed?
- Do I communicate differently with others?
- What destructive habits tempt me?
- Do I project my inner pain onto others?
🌱 The four A's of self-care
The excerpt recommends four self-awareness strategies:
| Strategy | What it means | What it prevents |
|---|
| Attention | Become aware of physical, psychological, social, and spiritual health; identify gratitude and areas for improvement | Drifting through life on autopilot |
| Acknowledgement | Honestly look at all you have witnessed; recognize the pain of loss | Invalidating your experiences |
| Affection | Look at yourself with kindness and warmth | Becoming bitter and "being too hard" on yourself |
| Acceptance | Be at peace with all aspects of yourself, talents and imperfections | Impatience, victim mentality, and blame |
📚 Additional support
- Healthy coping mechanisms: prayer, meditation, exercise, art, music.
- Organizations often sponsor employee assistance programs for counseling.
- Debriefing sessions after traumatic client loss, often facilitated by chaplains.
- Additional education in end-of-life care (e.g., palliative care certificates).
🩺 Applying the Nursing Process to Grief
🩺 Assessment across the continuum
Grief assessment includes the client, family members, and significant others.
- Begins at diagnosis of acute, chronic, or terminal illness or admission to a facility.
- Continues throughout terminal illness and into the bereavement period for survivors.
- Monitors for symptoms of complicated grief during bereavement.
🧩 Manifestations of grief
Grief can appear in three domains:
- Physical: feeling ill, headaches, tremors, muscle aches, exhaustion, insomnia, appetite changes, weight changes.
- Cognitive: lack of concentration, confusion, hallucinations.
- Emotional: anxiety, guilt, anger, fear, sadness, helplessness, feelings of relief.
Important: Manifestations vary by individual, age, culture, resources, and previous loss experiences. Report behaviors that endanger the client or family (depression, suicidal ideation, symptoms lasting >6 months).
🎯 Nursing diagnosis: Maladaptive Grieving
Maladaptive Grieving: A disorder that occurs after the death of a significant other, in which the experience of distress accompanying bereavement fails to follow sociocultural expectations.
Selected defining characteristics:
- Anxiety
- Decreased role performance
- Depressive symptoms
- Expresses anger or being overwhelmed
- Expresses feeling of emptiness
- Gastrointestinal symptoms
- Longing for the deceased person
Example PES statement: "Maladaptive Grieving related to excessive emotional disturbance as evidenced by decreased role performance and preoccupation with thoughts about her deceased husband."
🎯 Goals and outcomes
Sample goal: "The client will experience grief resolution."
Grief resolution is evidenced by:
- Resolves feelings about the loss
- Verbalizes reality and acceptance of loss
- Maintains living environment
- Seeks social support
Sample SMART outcome: "The client will discuss the meaning of the loss to their life in the next two weeks."
🤝 Key interventions
🤝 Coping enhancement
- Assist in identifying short- and long-term goals.
- Help examine available resources and break down complex steps.
- Use a calm, reassuring approach; provide an atmosphere of acceptance.
- Provide factual information about diagnosis, treatment, and prognosis.
- Seek to understand the client's perspective of the stressful situation.
- Discourage decision-making under severe stress.
- Acknowledge cultural and spiritual background; encourage use of spiritual resources.
- Encourage verbalization of feelings, perceptions, and fears.
- Instruct on relaxation techniques.
🤝 Anticipatory grieving interventions
Anticipatory grieving: a grief reaction that occurs in anticipation of an impending loss.
- Can relate to impending death, loss of a body part, or loss of home (e.g., moving to long-term care).
- Develop a trusting relationship using presence and therapeutic communication.
- Keep client and family informed of ongoing condition and care options (palliative care, hospice, home care).
- Actively listen and normalize expressions of grief.
- Discuss and document the client's preferred place of death.
- Recognize caregiver role strain in family members providing long-term care.
- Refer to counselors or chaplains as appropriate.
🤝 Grief work facilitation
- Identify the loss and the client's initial reaction.
- Listen to expressions of grief; encourage discussion of previous loss experiences.
- Make empathetic statements about grief.
- Educate about stages and tasks of the grieving process.
- Support progression through personal grieving stages.
- Encourage implementation of cultural, religious, and social customs.
- Answer children's questions and encourage discussion of feelings.
- Identify sources of community support.
🌐 Community resources
- Hospice programs include bereavement follow-up with memorial services and support groups.
- Resources mentioned: AARP, National Hospice and Palliative Care Organization, National Association for Home Care & Hospice, Hospice Foundation of America.
- Individual, group counseling, or psychotherapy may assist the bereaved.
- Antianxiety medications or antidepressants may be prescribed for depression or anxiety related to grieving.
🕊️ Palliative Care Management
🕊️ Core definition and dimensions
Palliative care: client and family-centered care that optimizes quality of life by anticipating, preventing, and treating suffering.
Palliative care addresses four dimensions:
- Physical: functional ability, strength/fatigue, sleep/rest, nausea, appetite, constipation, pain.
- Psychological: anxiety, depression, enjoyment/leisure, pain, distress, happiness, fear, cognition/attention.
- Social: financial burden, caregiver burden, roles/relationships, affection, appearance.
- Spiritual: hope, suffering, meaning of pain, religiosity, transcendence.
🕊️ Nursing interventions for end-of-life care
- Elicit the client's goals for care.
- Listen to the client and family members.
- Communicate with the interdisciplinary team and advocate for the client's wishes.
- Manage end-of-life symptoms.
- Encourage reminiscing.
- Facilitate participation in religious rituals and spiritual practices.
- Make referrals to chaplains, clergy, and other spiritual support.
🕊️ What cannot be "fixed"
The excerpt emphasizes realistic expectations:
- We cannot change the inevitability of death.
- We cannot change the anguish felt when a loved one dies.
- We must all face the fact that we, too, will die.
- Perfect words or interventions rarely exist, so providing presence is vital.
💊 Managing Common End-of-Life Symptoms
💊 Pain
Pain: "whatever the experiencing person says it is, existing whenever they say it does."
- When a client cannot verbally report pain, assess nonverbal and behavioral indicators.
- Goal: balance pain relief with managing side effects and oversedation.
- Many analgesic options are available; reassure clients that satisfactory pain relief is achievable.
💊 Dyspnea
Dyspnea: a subjective experience of breathing discomfort; the most reported symptom in life-limiting illness.
- Extremely frightening for clients.
- Don't confuse: Respiratory rate and oxygenation status do not always correlate with breathlessness.
Assessment components:
- Ask client to rate breathlessness severity (0-10 scale).
- Assess ability to speak in sentences, phrases, or words.
- Assess anxiety, respiratory rate/effort, oxygenation status, lung sounds, chest pain.
- Evaluate impact on functional status and quality of life.
Pharmacological management: Small doses of opioids dilate pulmonary blood vessels, allowing more blood flow to lungs and lessening work of breathing, with little impact on respiratory status or life expectancy.
Nonpharmacological interventions:
- Pursed-lip breathing
- Energy conservation techniques
- Fans and open windows to circulate air
- Elevation of client bed; tripod position
- Relaxation techniques (music, calm/cool environment)
- Health teaching to reduce anxiety
💊 Cough
- Can cause pain, fatigue, vomiting, and insomnia.
- Common in advanced COPD, heart failure, cancer, and AIDS.
- Medications: opioids, dextromethorphan, benzonatate.
- Guaifenesin thins thick secretions; anticholinergics (scopolamine) for high-volume secretions.
💊 Anorexia and cachexia
Anorexia: loss of appetite or desire to eat.
Cachexia: wasting of muscle and adipose tissue due to lack of nutrition.
- Weight loss is present in both and associated with decreased survival.
- Important: Aggressive nutritional treatment does not improve survival or quality of life and can create more discomfort as body systems shut down.
Assessment focuses on understanding the client's experience and determining potentially reversible causes.
Interventions:
- Goal: eating for pleasure at end of life.
- Encourage favorite foods, high-calorie foods, easy-to-chew foods.
- Small, frequent meals with pleasing presentation.
- Move client away from cooking odors.
- Medications: mirtazapine, olanzapine, metoclopramide, medical marijuana, or dronabinol.
- Enteral nutrition may help clients who have appetite but cannot swallow.
Health teaching: Many family members perceive eating as a way to "get better" and are distressed. Explain that forcing eating may cause more discomfort.
💊 Constipation and diarrhea
Constipation:
Constipation: having less than three bowel movements per week.
- Common due to low food/fluid intake, opioids, chemotherapy, impaired mobility.
- Goal: bowel movement at least every 72 hours regardless of intake.
- Treatment: oral stool softeners (docusate) and stimulant (sennosides); rectal suppositories (bisacodyl) or enemas if oral medications ineffective.
Diarrhea:
Diarrhea: more than three unformed stools in 24 hours.
- Common side effect of chemotherapy, pelvic radiation, AIDS treatment.
- Can cause dehydration, skin breakdown, electrolyte imbalances.
- Treatment: promote hydration (water, sports drinks); IV fluids may be needed.
- Medications: loperamide, psyllium, anticholinergic agents.
💊 Nausea and vomiting
Assessment includes: history, effectiveness of previous treatment, medication history, frequency/intensity of episodes, precipitating/alleviating activities.
Nonpharmacological interventions:
- Eat meals and fluids at room temperature.
- Avoid strong odors and high-bulk meals.
- Use relaxation techniques and music therapy.
- Aromatherapy with peppermint oil significantly decreases nausea/vomiting.
Medications: Antiemetics such as prochlorperazine and ondansetron.
💊 Depression
- Clients with serious illness normally experience sadness, grief, and loss but usually have some capacity for pleasure.
- Don't confuse: Persistent helplessness, hopelessness, and suicidal ideation are NOT normal and should be treated.
- Undertreated depression causes decreased immune response, decreased quality of life, and decreased survival time.
Medications: SSRIs (fluoxetine, paroxetine, sertraline, citalopram) are first-line treatment.
Nonpharmacological interventions:
- Promote autonomy and control.
- Encourage client/family participation in care.
- Reminiscing and life review to focus on accomplishments and promote closure.
- Grief counseling.
- Maximize symptom management.
- Assist client to draw on previous sources of strength (faith, religious rituals, spirituality).
- Teach relaxation techniques.
- Provide ongoing emotional support and "being present."
- Reduce isolation; facilitate spiritual support.
Suicide assessment: Critical for clients with depression. Ask:
- Do you have interest or pleasure in doing things?
- Have you had thoughts of harming yourself?
- If yes, do you have a plan?
To destigmatize: "It wouldn't be unusual for someone in your circumstances to have thoughts of harming themselves. Have you had thoughts like that?"
Clients with immediate, precise suicide plans and resources should be immediately evaluated by psychiatric professionals.
💊 Anxiety
Anxiety: a subjective feeling of apprehension, tension, insecurity, and uneasiness, usually without a known specific cause.
- Assessed along a continuum: mild, moderate, or severe.
- Clients with life-limiting illness experience anxiety due to prognosis, mortality, financial concerns, uncontrolled symptoms, loss of control.
Physical symptoms: sweating, tachycardia, restlessness, agitation, trembling, chest pain, hyperventilation, tension, insomnia.
Cognitive symptoms: recurrent/persistent thoughts, difficulty concentrating.
Medications: Benzodiazepines (lorazepam); assess for adverse effects (oversedation, falls, delirium, especially in frail elderly).
Nonpharmacological interventions:
- Maximize symptom management to decrease stressors.
- Promote relaxation and guided imagery (breathing exercises, progressive muscle relaxation, audiotapes).
- Refer for psychiatric counseling if unable to cope.
- Facilitate spiritual support (chaplains, clergy).
- Acknowledge client fears; use open-ended questions and active listening.
- Identify effective past coping strategies; teach new skills.
- Provide concrete information to eliminate fear of the unknown.
- Encourage use of a stress diary to understand relationships between situations, thoughts, and feelings.
💊 Cognitive changes (delirium)
- Common in hospitals and palliative care settings; up to 90% of clients develop delirium in final days/hours.
- Important: Early detection can cause resolution if the cause is reversible.
Symptoms: agitation, confusion, hallucinations, inappropriate behavior.
Obtain information from caregiver to establish mental status baseline. The most common cause of delirium at end of life is medication, followed by metabolic insufficiency due to organ [text cuts off].